Monday, October 24, 2011

Urge your Representative to attend an important briefing on Down syndrome

Email your Representative from the following states now! Urge him/her to attend an important briefing on Down syndrome research.

Email your Representative below and urge him/her to attend a briefing of the US Congressional Down Syndrome Caucus on Down Syndrome research which is being held on Tuesday, October 25th at 4:30 pm in room 121 of the US House of Representatives Cannon Office Building. This briefing is being organized by Congresswoman Cathy McMorris Rodgers (R-WA) who is a co-chair of the Down Syndrome Caucus and herself a parent of a child with Down syndrome.

The briefing will assist the Congressional Down Syndrome Caucus in developing policy priorities by providing a comprehensive overview of the state of research in Down syndrome and other rare disorders by demonstrating how the study of rare disorders will inform more common disorders.   Presenters will discuss the unique biology of Down syndrome, current research efforts in Down syndrome, including NIH and privately funded efforts, and barriers to Down syndrome research.  By improving awareness of Down syndrome research, presenters will be able to show that an improved research infrastructure will provide opportunity for translational and collaborative research that will not only benefit the lives of people with Down syndrome, but the general public as well.

Congressional Targets:
  • Anders Crenshaw – (R- FL);
  • Vern Buchanon – FL;
  • Nita  Lowey – (D- NY)
  • Carolyn McCarthy – (D-NY)
  • Lois Capps –(D- CA)
  • Susan Davis –(D- CA)
  • Dian DeGette –(D- CO)
  • Michael Rogers –(R- MI)
  • Michael Burgess – (R-TX)
  • Ruben Hinojosa – (D-TX)
from the NDSS and NDSC

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