Thursday, October 30, 2014

Kid Rock surprises fan, makes birthday wish come true

by Brian McCollum from The Detroit Free Press:
One Kid Rock fan just got a present he'll remember for many birthdays to come.
The Detroit star popped in on a 30th birthday party Monday for Dan McGurk, a diehard Rock fan who had been trying to get the musician's attention via letters and videos.
McGurk has Down Syndrome, according to Toledo's WTOL-TV, and had been working to get a party invitation onto Rock's radar for months.
Video of Monday night's scene was later posted to YouTube. As friends and family watch on at the Clarkston Union restaurant, McGurk lights up with surprise and delight as Rock strolls in singing "Happy Birthday."

Wednesday, October 29, 2014

Alun Rees had 'worst' pressure sores, Wrexham inquest hears

A man with Down's Syndrome had the worst pressure sores some medical staff had ever seen when he was admitted to hospital, an inquest has heard.
Alun Rees died from multiple organ failure due to an overwhelming sepsis infection a month after being taken to Wrexham Maelor Hospital in August 2011.
The 54-year-old had been cared for by his sister at their home in Brymbo since 1993.
The hearing in Ruthin was told the house was "not fit to live in".
Home Office pathologist Dr Brian Rodgers said it was his view that the sores had been present on Mr Rees's body for a period of time.
"They could have been there for weeks" he said, adding that some medical staff had documented that they were "some of the worst they'd ever seen".
Ambulance technician Douglas Green, who attended the home of Mr Rees and his sister, Brenda Griffiths, on the day he was admitted to hospital, told the hearing it was "not fit to live in".
He described it as cluttered with an "overwhelming smell" which he agreed was probably because of a "lack of hygiene and ventilation".
He told the hearing Mr Rees's sister had called the ambulance because her brother's breathing had changed, he was pale, weak and lethargic.

Tuesday, October 28, 2014

fourth-grader with Down syndrome wins self-advocacy award

by Elena Kadvany from Palo Alto Online:
Dashiell Meier might be Palo Alto's most accomplished 10 year old.
The Ohlone Elementary School fourth-grader with Down syndrome has been to Sacramento several times to advocate for Down syndrome awareness. This February, he traveled to Capitol Hill to meet with members of Congress as a representative of the Silicon Valley Down Syndrome Network. He also participated in the National Down Syndrome Society's annual Buddy Walk in Washington, D.C.
And since first grade, Dashiell has been an advocate, speaking to Palo Alto elementary school classrooms about his experience as a person with disabilities. He explains why he can't run as fast as other kids (common conditions of Down syndrome are weak muscles and joint instability) or what to do if someone can't understand what he's saying, since he has trouble enunciating (just ask him to repeat himself).
Dashiell, an infectiously positive and energetic boy, was this year nominated by two of his teachers for a national self-advocacy honor. The Council For Exceptional Children's "Yes I Can!" Award recognizes children and youth ages 2 to 21 with special needs who demonstrate achievement in one of seven categories: self-advocacy, academics, arts, athletics, school and community activities, technology and transition.

Saturday, October 18, 2014

Maryland Police Training Commission Adopts Training Objectives

by Kevin McManus from 930 WFMD Free Talk:
Proposals to help improve training of police officers when dealing with persons with disabilities were adopted last week by the Maryland Police Training Commission. The recommendations, from the Commission for Effective Community Inclusion of Individuals with Intellectual and Developmental Disabilities (the Inclusion Commission), are expected to be incorporated into training programs for law enforcement recruits, according to George Failla, the Acting Secretary of the Maryland Department of Disabilities.
"As we move forward with the next academy or set of academy training sessions for the new recruits, all different academies will need to meet these training objectives," says Failla.
The Inclusion Commission was set up last year by the Governor following the death of Ethan Saylor of New Market. He died following a struggle with off-duty Sheriff's Deputies who were trying to remove him from a movie theater. Saylor had Down Syndrome.

Friday, October 17, 2014

Splendid scenery on a winding road

My granddaughter, Lucy, has Down syndrome. When she was born 11 years ago and I heard these words, I was shattered.
Stereotypes take a long time to die. My head was full of them, despite knowing Chris McLean, who has Down syndrome and has been part of our extended family for more than 40 years, despite having watched the television series “Life Goes On” and seeing how much a person with Down syndrome can accomplish.
I boomeranged back to images I’d seen as a child and articles I’d read then, and worried about Lucy’s future and our future as a family. How could we live with fear and sadness and worry the rest of our lives?
The beginning of everything is the hardest. When you have a baby with Down syndrome, the beginning is extra hard. Doctors tell you all the medical issues that might arise with your perfectly beautiful newborn, and it’s overwhelming. If every baby placed in a mother’s arms came with a long list of life’s tragedies that statistically might happen, women would stop having children.
Eleven years later I’m aware that the journey has not been without challenges. Fear and sadness and worry come and go in everybody’s life. The difference is that life with a typical kid is like a ride on the freeway. There are some stops and starts, traffic, bridge repairs, closed exits, and there are accidents now and then, sometimes fatal ones. But mostly it’s 60 m.p.h., no detours, no traffic lights, no potholes.
Life with a kid who has Down syndrome or autism or Asperger’s or cerebral palsy or muscular dystrophy or anything that makes her different from most everyone else is like traveling a country road in Maine.
The road is narrow and it’s hilly and it twists and turns, and for long stretches you’re all alone on that road. And it’s always slow going, stop signs and animal crossings and sleepy little towns where the speed limit is actually enforced. And when it rains the road is slick and dangerous. And when it snows it is almost impassable. And sometimes you wish there were an exit to a well-lit, smooth, straight highway.
But there isn’t.

Thursday, October 16, 2014

WATCH: Heartwarming video shows officer giving NYPD hat to young fan in Times Square

A heartwarming new video is making the rounds of a NYPD officer doing a good deed. A young fan was left beaming.

In the video, one of the officers hands a boy with Down 's syndrome an NYPD cap. With the cap firmly on, the child then salutes the officers before walking away.

The video was recorded by a tourist from Brazil.

Wednesday, October 15, 2014

The Black Swamp Ice Frogs, a special education hockey team, received new training piece

by Natasha Ivery from The BG News:
A special education hockey team received a new piece of equipment in a special revealing ceremony that will help them avoid injuries and improve their game.
This Saturday, the Black Swamp Ice Frogs, the special education hockey team from the Bowling Green area, received a new piece of equipment called the Kaye Trainer that will help team members who are a little shaky on walking skills in moving around on the ice better and improve their skill in the University’s Ice Arena.
The Kaye Trainer was donated by Randy Young and his council in Baton Rouge, Louisiana. Randy Young is the past international president of United Commercial Travelers, a nonprofit financial service membership organization that supports causes and communities across America.
“The history of UCT is pretty extensive and there’s a lot of connections,” says young. “UCT was started in 1888 by two traveling salesman and dues were $5 that they placed in a jar to draw from when their families needed it. It’s grown into so much since then.”
Jen Chillinsky, community outreach manager for UCT, said UCT is an organization that provides a lot of services and is interested in various causes.
“Four years ago, UCT needed an organization to aid with intellectual and mental disabilities and we got involved with the Ice Frogs. Our first Winter Hockey Fest was held in Toledo, Ohio and to date we’ve raised $25,000,” Chillinsky said. “This January, our next Winter Hockey Fest will be in January in Bolencia, California. We host them and travel from the West to East coast each year. It’s an easy way for families who don’t have that much money to get involved.”

Tuesday, October 14, 2014

Bismarck parents buy coffee house for son’s future

by Karee Magee from The Bismark Tribune:
Sandy and Matt McMerty, like most parents, believe in setting the bar high for their three children in order to see them succeed. But for the McMertys, that meant buying a coffee shop in the Bismarck Public Library for their eldest son.
When Cristian McMerty, 13, was born with Down syndrome, the McMertys wanted to find a way for their son to succeed in life instead of being limited.
“You can set the bar low and reach it, but that’s a lot worse than setting the bar high and giving a person the chance to reach it,” said Sandy McMerty, marketing communication manager at the Department of Commerce.
After stumbling across Tim’s Place in Albuquerque, N.M., the McMertys were inspired.
Tim’s Place is a successful restaurant owned and operated by Tim Harris, a man with Down syndrome, where the slogan is “comfort, food, and hugs.”
“We thought, wouldn’t it be great if we had some type of business we could all run together,” said Matt McMerty, owner of a record management company, Docustore.
Years after deciding on what the McMertys call their “big dream,” they opened The Gifted Bean Coffee House.
The McMertys said they are hoping that if the coffee house works out, Cristian will be able to take over the business.
His parents said that he already wants to start.
“He keeps telling his teachers he can’t come to school today because he has to work,” Matt McMerty said.
The McMertys began speaking with the previous owner at the end of August.
Matt McMerty said he thought it would take about two years before they could purchase the business, but the owner wanted to sell immediately.

Monday, October 13, 2014

Ballet Dancer Gives Kids With Down Syndrome A New Hope Of Expressing Themselves Through Dance

from Superstar Magazine:
Colleen Perry was inspired by a magazine article to let kids and adults with Down Syndrome express themselves through ballet and hip hop dance. That’s how the incredible dance program called Free 2 Be Me Dance was born.

Sunday, October 12, 2014

Chatting with Kellie, a Disney Lover with Down Syndrome

Kellie’s mother knew that something was up.  It wasn’t like her daughter to complain about aches and pains, and she seemed to be getting sick all the time.  Normally she was as bubbly and chatty as any other eight year-old girl; perhaps even more so.  She usually relished any kind of outing, whether it be shopping or going out to eat, and struck up a conversation with every single person she met along the way, always with the same question: “Have you ever been to Disneyland?”  Kellie made friends everywhere!  Now she seemed to be tired all the time… too tired, even, for a day trip to her favorite place in the whole world: the nearby Disneyland theme park.
So, Kellie’s mother took her to see the pediatrician.  Along with the genetic disorder, Down Syndrome, Kellie had been born with a heart defect and had undergone open heart surgery when she was very young.  Evette wondered if her daughter’s symptoms were cardiac in nature but another, more frightening thought soon took hold.  “Could it be leukemia?” she asked the doctor, hoping and praying that she would say no.  After all, hadn’t her youngest child been through enough?
Instead of rejecting that possibility the doctor opted to do a blood test, which Kellie endured without a complaint.  That night Evette and her husband, Lance, anxiously awaited their daughter’s test results.  The next morning, the doctor called.
“Which hospital do you want me to send you to?” she said.
Kellie was admitted to Children’s Hospital of Orange County, near Disneyland.  Further tests of her spinal fluid confirmed that she had acute lymphoblastic leukemia (ALL), a cancer of the white blood cells, the cells in the body that normally fight infections.
According to the National Cancer Institute, ALL is the most common cancer in children, representing 23 percent of cancer diagnoses among children younger than 15 years of age.  It occurs in about one of every 29,000 children in the United States each year, with a somewhat higher incidence for children born with Down Syndrome.