Showing posts with label Delaware. Show all posts
Showing posts with label Delaware. Show all posts

Saturday, January 20, 2018

Delaware HB 296 - helping people increase savings in ABLE accounts

321foundation is proud to be a part of the efforts to pass Delaware HB 296 which will promote contributions to 529a ABLE savings accounts by offing a tax deduction. This will promote savings and financial independence for Delaware ABLE account holders. Funds from the accounts can be used  for many quality of life expenses not covered by Medicaid. 

Bill summary:
This bill creates a tax deduction of up to $2,500 for an individual or $5,000 for a married couple for contributions to a qualified 529A savings account, or "ABLE" plan - a special account for meeting the needs of certain individuals with disabilities. The deduction may only be claimed by a taxpayer who makes less than $125,000 or a married couple who makes less than $250,000. It is applicable only to ABLE plans sponsored by the State of Delaware or offered by a consortium of states of which Delaware is a member.

The bill was introduced on 1/16/18 and will be reviewed in committee by the end of the month. 

Tuesday, May 13, 2014

Delaware and Maryland join Massachusetts and Kentucky in enacting laws to provide information with a Down syndrome test result

Last week, Governor O’Malley of Maryland and then Governor Markell of Delaware each signed laws requiring that their state agencies provide accurate, up-to-date information about Down syndrome for parents receiving a test result. They join Massachusetts (2012) and Kentucky (2013) in passing such legislation.

Delaware
Delaware joins Massachusetts and Kentucky exactly in what is required, passing in substance the exact same laws as passed in those states. So, now in Delaware, Massachusetts, and Kentucky anyone delivering a test result for Down syndrome to parents is required to provide accurate, up-to-date written information and contact information to local Down syndrome support organizations. Delaware hopefully will further join Massachusetts and Kentucky in identifying the same written information and resources to further standardize the way prenatal testing and postnatal diagnoses are administered.

Maryland
Maryland also passed a law providing information. Compelling testimony was taken during the hearings on the pending legislation:
When Heather Sachs’ daughter was born with Down Syndrome eight years ago, she wasn’t given helpful information or the names of parent groups offering advice and support.
Instead, Sachs tells Maryland lawmakers, she was simply handed a pamphlet, entitled “So You’ve Had a Mongoloid: Now What?”
On the audio of the Senate Finance Committee hearing where she testified, the gasps from lawmakers and attendees are audible.

Tuesday, March 11, 2014

Group dispels Down syndrome myths

by Kelly Bothum from the News Journal / Delaware Online:
Like many girls her age, 7-year-old Kayla Kosmalski is rarely at a loss for words.
So when she meets someone for the first time, she's got plenty to say. She might talk about what she's learning in her second-grade class at Cedar Lane Elementary School near Middletown. She might show off a new move learned in her hip-hop class or strum a few chords on her guitar.
Or she might tell you that she was born with Down syndrome, a genetic condition that occurs when a person is born with a full or partial extra copy of chromosome 21.
Years ago, that diagnosis could have meant a life with diluted expectations, little social interaction and limited educational opportunities.
But that's not been the case for Kayla, who learns in a classroom that includes those with disabilities as well as those without them. She takes dance classes and swim lessons with typically abled peers and friends who see Kayla – her sunny personality, radiant good looks and loving heart – rather than an extra chromosome.
It's the kind of life Kayla's parents, Rick and Amy Kosmalski, have worked hard to give their daughter. And it's what pushes them to advocate on behalf of other families raising children with disabilities. The Kosmalskis, along with eight other families, recently formed the 321foundation, a nonprofit organization whose mission is to advocate for people with Down syndrome and their loved ones.
"People today with Down syndrome are going to school with their peers. They're doing the same things as their peers. They may have more medical complications, like heart surgeries, but once you get past those medical symptoms that go along with it, they're driving cars, getting married, getting jobs," said Rick Kosmalski, Kayla's dad.
World Down Syndrome Day will be held March 21, a date intended to signify the uniqueness of having three 21st chromosomes, which leads to Down syndrome. Across the globe, people are encouraged to wear bold, mismatched socks with the hope that the fun footwear could inspire people to ask questions that lead to a discussion about Down syndrome.
"The only way to make something better is to get acceptance from people in the community. The only way to get acceptance is to have them understand it," Kosmalski said. "Knowledge leads to acceptance."

Saturday, February 9, 2013

More than 3,500 take the 'Plunge' for Special Olympics Delaware


Special Olympics Delaware said that 3,500 people participated in the 2013 Polar Bear Plunge benefiting their organization today.
The event raised $652,000, spokesman Jon Buzby said. He said that in 22 years, more than $6.8 million has been raised.
Air temperature at the time of the plunge was 30 degrees, while water temperature was 38 degrees.
Buzby said 51 dogs participated in the Pooch Plunge held Saturday.


Wednesday, August 15, 2012

breakfast & run fundraiser showcases its participants

WMDT 47 News - Delmarva's Choice

by Natalie Costello from WMDT 47 News:
Sunday, two Delaware organizations, the Boardwalk Buddy Walk and Best Buddies Delaware teamed up to host the first annual Dewey Beach 5K Run and Pancake Breakfast.
People came from near and far to show their support for The Best Buddies Delaware. The event was held to raise funds and educate others about the importance of providing enriching programs for people with developmental and intellectual disabilities.
"I truly believe in the organization of Best Buddies, it's brought so many kids at the High School together. It's friendships that last a lifetime," says Pam Johnson. Johnson is the advisor for Dover High School's Best Buddy Program.
Dennis Diehl, founder of Boardwalk Buddy Walk, works closely with students at Chimes, a Delaware organization that provides vocational and other types opportunities for people with disabilities.
Dennis is proud of all his students, especially Eddie Drake who is studying culinary arts.
"It makes my day, I come and watch these guys come in and out of the kitchen, it gives them such an appreciation that they are doing something meaningful... and watching Eddie smile. He makes me laugh all the time. It's a great day when Eddie shows up to work," says Dennis.
And Dennis was right, you can't help but smile when you are around Eddie. When asked what his favorite part was about cooking, he quickly replied, "Um...Spaghetti!"
And for high school senior Andrew Granda, a Best Buddies participant and avid cross country runner, it was today's 5K event that brings a smile to his face. ""I've been in a lot of 5K's, in fact, I've done cross county for three years and I am going to do it for my last year."
Sunday's fundraiser was more than just a 5K and pancake breakfast, it was a chance for Best Buddies Delaware to showcase some of the amazing talents and personalities of their participants.

Tuesday, August 7, 2012

Days of Summer Camp a success for student’s senior project



by Kim Manahan from Middletown Transcript:
Lauren Camp’s Days of Summer Camp was such a success last week that she’s already planning on doing it again next year.
The rising Appoquinimink High School senior held a three-day camp for children with Down syndrome for three days last week as her senior project, as she said that it went better than she could have ever imagined.
A total of 30 children attended camp at the St. Anne’s Episcopal School from August 1 - 3. About 20 were children with Down syndrome and the rest were their siblings.
“We were lucky enough to have a volunteer for every child and also some extra volunteers, such as a nurse and teacher every day,” Camp said.
Several local businesses came out too, including M.O.T. Soccer. 
“The kids loved soccer,” Camp said.
They also loved doing Zumba, which was led by an instructor from the Premier Center for the Arts, she said.
The Down Syndrome Association of Delaware provided the crafts, but the rest of the funding for the camp came through Camp’s fundraising efforts and local businesses.
“We did water play, soccer, karate, yoga, Zumba and many crafts,” Camp said. “I can’t wait to do it again next year for longer days and a full week.”
What’s new
Even though Camp will be preparing to head off to college next summer, she still wants to hold camp again – this time in either June or July though.
And she wants to make it even bigger.
“I want to do it from Monday through Friday from 9 a.m. to 3 p.m.,” she said. “Longer days and for a whole week.”
Before she can head off to college though, Camp still has to complete her senior project.
Towards the end of the coming school year, she will be giving a presentation on her project, as do other seniors.
Camp said that she hopes to attend American University in Washington D.C. for college.
What we've reported
Camp has been working with children with Down syndrome since she was in the fourth grade.
It’s something that she loves to do.
“They’re always very friendly,” she said. “They’re always so full and life and see the positive side to everything.”
She chose to hold the Days of Summer Camp as her senior project so that she could do something for the children who have made her look at life differently.
With help from local businesses, volunteers, the Down Syndrome Association of Delaware and the community, Camp was able to turn the camp into a reality.
She branded it with a mission statement as well: “Days of Summer Camp strives to provide a fun, traditional summer camp experience for children ages four to 12 with Down syndrome and their siblings, at no cost for families.” 

Monday, June 20, 2011

Delaware's unique Blue Gold Hand-in-Hand program



From Delawareoniline.com:

It was August of 1973, and Tony Glenn, a recent graduate of Conrad High School, had earned a treasured spot in the annual Blue-Gold All-Star high school football game.
The contest had been a summer staple since 1956, matching the First State's top recent graduates in a North vs. South format. The 56th annual game was played Saturday night at Delaware Stadium.
Two prominent Wilmington-area sportsmen, Jim Williams and Bob Carpenter, started the game to raise money for what were then termed "mentally retarded" children. Each was the father of such a child.
Glenn's mother, Rose, had reminded her son, "This is more than just about you," in reference to that cause as he headed to the two-week camp leading to the game at the University of Delaware.
"I didn't pay much attention to that," Glenn confessed recently.
But, one day at practice, Glenn came to understand the Blue-Gold game's meaning in a way he didn't foresee. It would permanently shape him, as he would begin a lifelong association with the game. He has spent the past 10 years as executive director of the Delaware Foundation Reaching Citizens with Cognitive Disabilities (DFRC), which operates the game. DFRC funds programs that aid those citizens.
Glenn's enlightenment occurred on a practice field on the stadium's southern edge, where the Bob Carpenter Center now sits.
"The coaches called us over on the field one day and said there were going to be some school buses coming down from the Mary Campbell Center, and some retarded kids are going to be getting off the bus," Glenn recalled. "Back then, it was appropriate to use the word 'retarded.' I remember when the coach told us that, I just froze."
Glenn's fear was typical. He hadn't spent time around anyone who fit that description.
"All of a sudden, those buses pull up, and my knees start to shake," he said. "Sure enough, the first kids getting off the bus and running up to me have Down syndrome, and now I'm just petrified because, again, it's just ignorance, it's not knowing and not being around it.
"So then, all of a sudden, the kid takes my helmet and starts running. Another kid comes over, and I spend 15 minutes running around playing tackle football with three or four kids. Then I turn around, and they're getting on the bus, and the kid's taking my helmet with him. So it forces me back over to the bus, which is great. I get a chance to get the helmet and give the kid a hug and all that kind of stuff."
By that time, Glenn had been transformed.
"I'm walking away from the bus, and I'm thinking I was ashamed of myself because I was so afraid," he said. "Then I remember the buses leaving, and I just said, 'What's the difference?' We just had a great time, and something inside of me stirred.
"The next year, I came here to [the University of] Delaware to play football, and I joined the [Blue-Gold] committee right away."
Eventually, he would become the game's anointed leader because some felt he was the only one who could save DFRC from possible extinction.
For his dedication to the Blue-Gold cause, Glenn is among The News Journal's 50 Who Matter, a biweekly series spotlighting Delawareans who usually work quietly behind the scenes to improve others' lives.
A lasting impact
In much the way Glenn was initially touched, the Blue-Gold game has impacted thousands of Delawareans over the years, especially since the advent of its Hand-in-Hand Program in 1974.
It matches football players, cheerleaders, band members and school ambassadors with a cognitively disabled "buddy" for various activities.
And on this Father's Day, Glenn once again can share the Blue-Gold experience with his sons.
Several years ago, Ryan Glenn, now a UD student working in football operations, served as an ambassador for the game. This year, Justin Glenn is a Blue lineman out of A.I. du Pont.
Blue-Gold involvement is second nature to Justin Glenn, but he has enjoyed watching his teammates come to understand the game's deeper meaning, too.
"They're a little skeptical at first," he said. "They didn't know what was going to come out of it when we first started in January. Once they met their buddy, they sort of had their bond and started to love their buddy and became good friends with their buddy. It's awesome to watch."
To Tony Glenn, that's the whole idea. It was hatched by others, then proudly embraced by him to the extent that it became his life's work and his daily passion.
"It all goes back to people caring about people, that we're all connected, believe it or not," Glenn said this week while watching the Blue team practice. "It's important because of the tradition of this game, but also because you're picking some of the finest high school leadership, not just players, but your cheerleaders, your ambassadors, which are your school leaders, and your band. All these kids have to be recommended, and it's an opportunity to display our young leadership in the state. From that standpoint, it's very important because the tradition continues, and now you have almost 10,000 alumni.
"If you've been in Delaware a while, you're touched by this, you can't escape this. ... It's part of the fabric of the state. So from that standpoint, it's huge. But it's the teaching that goes on that makes it important."
Glenn went on to play center for coach Tubby Raymond's Blue Hens, was a longtime volunteer assistant coach on his UD staff and taught at St. Mark's High School for 18 years. But every summer, he was involved in the Blue-Gold game, which moved from August to June in 1983.
Initially, it was selling T-shirts and tickets and working as an athletic trainer. In 1984, Glenn was camp director, athletic chairman and assistant coach. He was game chairman, the person who oversees all aspects of the event itself, in 1988.
In 1991, he was elected to the board of trustees, a year after promising Carpenter, just before the game's co-founder died, that he would devote his life to Blue-Gold.
Ten years later, after Glenn had attained a doctorate at Wilmington University with a dissertation on DFRC and Blue-Gold, he was named executive director.
At the time, DFRC was an all-volunteer organization suffering from a lack of leadership, said Jodi Keller, a longtime board member who is now its vice president. It had briefly experimented, unsuccessfully, with having a paid executive director several years before.
She and others on the board felt DFRC not only needed full-time leadership, but it had to be from Glenn because of his unrivaled passion for its mission.
"We were actually thinking that maybe we should throw in the towel," said Keller, whose son Wes, now 18, had been a "buddy" in the game. "But we met at my house and said, 'We can't let DFRC fold.' "
The board saw Glenn as DFRC's lifeline. Glenn put considerable thought and prayer into the board's offer to become DFRC executive director before accepting, he said, over other, more lucrative opportunities.
"He understood. He was raised with the DFRC," Keller said. "He had all the experience, all the tools.
"When he took over, it was just like this spark. He's so emotional, and he cares so deeply, and that's exactly what we needed."
Keller has watched in awe, she said, as Glenn has spoken to students about disability awareness. The Glenn she knows is often "smiling ear-to-ear," she said, "with so much passion pouring out of his pores."
In its first 46 years, DFRC raised $3.4 million. In the past 10, it has raised an additional $2.2 million.
In accepting the offer to take over, Glenn remembered his promise to Carpenter.
"DFRC needed someone who understood the family," said Glenn, who passes the credit to its army of volunteers and participants.
St. Elizabeth High School football coach Joe Hemphill, who has directed the game's training camp since the 1980s, said Blue-Gold "got to be too big not to have someone in a leadership role. 'It's not just a football game,' as they say. There are a lot of things to do and an awful lot of volunteers and people involved. Tony's done a fantastic job of pulling that all together and keeping it organized and staying on top of things."
Seven annual fundraising events fill the DFRC agenda, with an auction, three golf tournaments, a 5K run and the "Hollidazzle" fashion show joining the football game.
"It's his life," Hemphill said about Glenn. "He's made Blue-Gold his life, and that's what you have to have."
DFRC provides grants to large groups as well as for something as small as a local stable's horseback-riding program for autistic kids or as simple as the mother of a disabled child needing a specially equipped van.
"Our mission is to raise the money for everybody," said Glenn, who often collaborates with other groups in that quest. "I don't like raising money, so if we do the right thing, the money will come if we honor the process."
'We're all learning' After Glenn became executive director, DFRC dropped the long-standing slogan that was so closely associated with the game: "We Play That They May Learn."
It last appeared on posters, T-shirts, advertisements and other game-related material in 2001.
"Guess what? We're all learning," Glenn said. "When I was doing the research for my doctorate, I found that [Blue-Gold involvement] shows significant change in the high school participants who supposedly don't have the intellectual disability. Their whole life changes. Their whole attitude changes significantly.
"[With the slogan], it was almost like we were saying, 'Aren't we glad that we showed up to help you?' And the bottom line is, now, as soon as I give, I receive. I believe that's why we're here. No matter what we do, all of us are called to give of ourselves. That's the reward we get back, so if you're giving of yourself, you're receiving. That's a truth."
Glenn knows all that from personal experience, gained first on a 1973 practice field and repeated frequently since.
He came out of that initial Blue-Gold meeting with the children whom the game benefits knowing, "We were just people," he said. "It didn't matter what people looked like. We just wanted to have a good time."
Glenn termed that realization "sacred," and his faith in the Blue-Gold game, its cause and effect, have been devout ever since.
He is glad to sing its praises, and Glenn does with all his seemingly limitless energy.
"We're just providing an opportunity for people to come together and learn from each other," Glenn said. "It's an enlightenment of just really caring about each other, and, in that caring and in that giving, we're receiving. Then, everybody's lifted. That's why DFRC's so important."