Thursday, April 16, 2015

Surprise! This Maryland prom proposal will make you smile



from MyFoxDC.com:
GLENELG, Md. - A Maryland girl surprised a boy at her school with a sweet prom proposal that was uploaded to YouTube

Cameras were rolling as James, who has Down syndrome, made his way to the gym at Glenelg High School in Howard County. 

As he walked inside, his classmates were gathered for the big moment. James made his way to the center of the basketball court when a girl named Maisy approached him with a sign-- and a question. 

Maisy asked James "Will you go to the prom with me?" It's a date because he said yes!

Thursday, April 9, 2015

21 things my son has taught me

Down syndrome: note of love to son 
Caroline Richardson, from Harrington Park, with her son Joshy, 8, who has Down syndrome. She would like to educate people about the condition. Picture: Robert pozo Source: News Corp Australia

by Vera Bertola from MacArthur Chronicle Campbelltown:
1: Every chromosome has two chromosomes. Trisomy 21: on every 21st chromosome it has a third chromosome.
2: No two people with Down syndrome are the same. They have their own personalities.
3. They are not always happy all the time. They can get very sad, angry and frustrated, just like you and I
4. It is very common for people with down syndrome to have a lot of medical conditions and problems. But not all. Joshy is one of the few who don’t have a heart condition, kidney problems or major bowel problems.
5. Developmentally people with Downs can be mild, mild to moderate, moderate to severe. Severe and so on. Joshy is severe. He wouldn’t be able to cope in a unit in a main stream school so he is in a special school.
6. People with Down syndrome can have dual diagnosis. As well as have Down syndrome, they can also have autism, defiance disorders, ADD, ADHD. The list can go on.

7. People with Down syndrome can work in jobs the same as anyone else. Some can drive cars.

Wednesday, April 8, 2015

HK Profile: Frank Freeman - The Purest People photographer

 
Imagine feeling so inspired by the people you work with that it changes who you are, right down to your name. That’s what happened to Frank Freeman – née Frank Chun. The professional photographer has just launched the third in a series of exhibitions in his biggest project to date, The Purest People. His portraits capture 23 sparkling personalities all aged between 10 and 20. But these aren’t typical models. In fact, they all have Down’s Syndrome – a genetic disorder caused by an extra chromosome that affects roughly 3,000 people in Hong Kong. The condition is typically associated with physical growth delays and intellectual disability, which can lead to prejudice against people with the disorder. That’s something Freeman wants to rectify through the power of photography. He’s found, from working with the models, that they highlight the importance of honesty and truthfulness, ultimately prompting him to change his name. “After shooting the models, I changed my name,” he says. “Now I’m Frank Freeman.”

Sunday, March 8, 2015

ABLE: Positive change and a fighting chance

Just before Christmas of last year, President Barack Obama signed the Achieving a Better Life Experience Act, or ABLE, allowing people with disabilities to open tax-free accounts where they can save money without fear of losing government benefits.
As soon as the Treasury Department writes eligibility requirements, states will be responsible for establishing and managing the program, expected to begin accepting applications from people by the end of this year.
In Savannah, this means new doors could be opening for the thousands of people who struggle to find work because of a disability.

Saturday, March 7, 2015

LuMind Foundation and Research Down Syndrome Merge to Create Leading Source of Private Funding for Down Syndrome Cognition Research

LuMind Foundation and Research Down Syndrome have combined resources and programs. Together, these organizations contributed nearly $12 million to stimulate cognition research, resulting in the discovery of multiple drug targets and supporting the initiation of four clinical trials.
March 2, 2015 (Marlborough, Mass.) – The LuMind Foundation (formerly the Down Syndrome Research and Treatment Foundation – DSRTF) and Research Down Syndrome (RDS), worldwide leaders in advancing Down syndrome cognition research, together announce consolidation of the two organizations. The new foundation will pursue their shared mission more effectively and efficiently, and leverage the tremendous progress each has made to ignite Down syndrome cognition discoveries.
The merged organization will be named LuMind Research Down Syndrome Foundation. The LuMind Research Down Syndrome Foundation will be led by a national board of directors, consisting of board members from both organizations. Ryan Hartman will continue from his position as LuMind Foundation Chairman of the Board and Dan Flatley, Research Down Syndrome founder and Chairman, will serve as Vice Chairman.