Wednesday, December 9, 2015

Hospital sorry for do not resuscitate order on patient with Downsyndrome

His family were horrified when, during a hospital stay related to his dementia, staff decided he should not be resuscitated if he developed heart or breathing problems. 
The order listed Down's Syndrome and his learning difficulties among the reasons.


http://www.bbc.com/news/health-34938832

Tuesday, December 8, 2015

He's everything to us

'He's everything to us' — Ben Szteliga has overcome challenges to become the Heart of the Dartmouth Indians

A page in Ben Szteliga’s eighth-grade scrapbook reads:
“My goal is to become a part of the Dartmouth High School football team next year. I will take a few months to get into shape. The steps I will take are: Make a commitment, train, run, exercise, keep trying and listen to the coaches. Never give up even if it’s hard. My goal will be worth it because I will feel proud to be a part of the team. I love football.”


Wednesday, September 9, 2015

Author and singer Marcus Sikora's latest book


There is a new book out that we think you should read.  It is called Black Day: The Monster Rock Band.  Not only does it have a great storyline and really cool art, but there is a cool song too.  You know what would be great – if you could hear from the author.  Wouldn’t that be great?  Well read on and then listen in.


The author is Marcus Sikora, a 25 year old creative soul who has Down syndrome and lives in Omaha, Nebraska.  We got a chance to talk to him and his dad, Quinn Sikora.  We heard about everything from the creative process to book release and all that goes with it.


Hopefully it is not a spoiler, but the book is about a band.  So they decided to have fun with it and form the band (at least to record the title song).  So if you listen in, you also get to listen to the song!  We really liked the song but what was super cool was the reaction that my son Luke had – He could not sit still and listen because he had to dance.  Now every time you say ‘We are the Band’ to Luke he shouts ‘Black Day!’

Hear the interview: http://downrightawesome.com/archives/936

Find out more at  www.blackdaybook.com.

Tuesday, September 8, 2015

If I Could See Through Your Eyes


You probably already saw it but if not then spend a couple minutes watching this new music video from The Costa Crew called "If I Could See Through Your Eyes" a song about seeing life through the eyes of people who are differently abled. 

And here's a great article from The Mighty on the song.