Top 5 News Posts for Down Syndrome in 2013 on DSD

Down Syndrome Daily's goal is to bring current news to the Down Syndrome community. These are the top 5 news items for 2013 based on DSD views.

John T Farley to serve as board member for the NDSC

 

Five years ago Farley began his run for the board of directors of the National Down Syndrome Congress. Each year the self advocates select one of their peers to represent them on the national board. Only one is voted in annually, and some years as many as 20 individuals run for this position.

 

Boy with Down syndrome, 6, left to die because of tired doctor's mix-up

 

A six-year-old boy with Down syndrome died after a hospital doctor mixed him up with another child who had a 'do not resuscitate' order.

Defending Kids with Down Syndrome: A Life Lesson on Vacation

 “We can not stay in this store,” I told him sharply. My son and my daughters, ages 5 and 7, were confused. “This store is making fun of people with Down syndrome,” I told them.

Down syndrome: Nutrient-dense foods are best

The best way to avoid unnecessary weight gain is to feed children nutrient-dense “real” foods and limit junk foods. As a rule of thumb, buy food that is grown rather than manufactured; so, plenty of fruit and vegetables. Since digestive issues are common in children with Down syndrome, a truly digestible diet can go a long way in preventing or treating yeast and/or constipation issues as soon as they appear.

World Down Syndrome Day Google Doodle

 

Mark Jones created a Google Doodle proposal for World Down Syndrome Day. Although it wasn't used by Google, it still generated a lot of global attention (it really did!).

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John T Farley to serve as board member for the NDSC

by Kelli Polatty from The Commercial Appeal:
John T. Farley spent a week in Washington at the National Down Syndrome Congress Convention.
As part of the convention, he spent one day meeting with Tennessee Senators and Congressmen to encourage their support of legislature that affects individuals with Down syndrome and other disabilities.
A few of the issues Farley spoke about included:

• The ABLE Act (Achieving a Better Life Experience): would allow individuals with disabilities the right to have savings above $2,000 without affecting other benefits.
• Down Syndrome Research Funding: Requesting more funds be allotted within National Institution of Health to research medical conditions that are prominent with Trisomy 21.
• Keeping all Students Safe Act: Banning the use of restraints and seclusion in public schools.

Five years ago Farley began his run for the board of directors of the National Down Syndrome Congress. Each year the self advocates select one of their peers to represent them on the national board. Only one is voted in annually, and some years as many as 20 individuals run for this position.
Last year they selected Farley as their representative. He will serve a three-year term.
The 2013 NDSC convention will be held in Denver, July 19-22. This is an educational opportunity for young adults with disabilities, their parents, and educators. For more information go to ndsccenter.org.
Kelli Polatty is the communications manager for the Down Syndrome Association of Memphis and the Mid-South, 2893 S. Mendenhall Road Suite 3, Memphis.