Boy with Down syndrome, 6, left to die because of tired doctor's mix-up

by Keith Kendrick from Parentdish:
A six-year-old boy with Down syndrome died after a hospital doctor mixed him up with another child who had a 'do not resuscitate' order.

Jack Adcock was admitted to the Leicester Royal Infirmary with breathing difficulties, a raised temperature and high heart rate.

His condition deteriorated and he suffered a cardiac arrest. But the inquest into his death heard how a paediatric registrar stopped staff who were trying to save the little boy – and said she didn't check his identity because she was too tired after a long shift.

Dr Hadiza Bawa-Garba said: "I should have checked the face before stopping. But I had been working for 12 hours with no break."

one family's journey before, during and after heart surgery

from DSAIA:

The Down Syndrome Guild of Greater Kansas City offered an amazing resource to other DS groups this past week.  The group posted a video which chronicles one family's journey before, during and after heart surgery. A local photographer was granted permission to go into the surgical suite to photograph the entire procedure start to finish. Parent reactions and post surgery follow up are compiled into a photo video montage. The award-winning video is being shown in some children's hospitals.  Although, some images are graphic, they are all tastefully done.

This is a stressful time for parents and the goal of the video was that some anxiety may be alleviated if they can view the process from start to finish. The group is pleased to share this link with their affiliate friends as they think many of your members could also benefit from viewing the video.