Showing posts with label Truth Be Told. Show all posts
Showing posts with label Truth Be Told. Show all posts

Saturday, August 4, 2012

Ear Tubes: A Confession


from Truth Be Told by Shawn Rohe:
Yeah, I’ll admit it.  I was that mom.  I felt that doctors were on an ear tubes kick.  Every direction I turned, I would hear of another child having surgery for tubes!  I became a determined mother.  Determined to keep my kids healthy, allowing my OCD to skyrocket to epic proportions; constant hand wiping, disinfecting toys & surfaces the girls might touch or touch them.  Truly believing if I kept colds and other illnesses at bay, my girls would not end up with ear infections and in turn not end up with ear tubes.  
     Frankly, I was embarrassed for being so narrow-minded and thinking that tubes were only for children (and the occasional adult) with chronic ear infections.   It took an audiologist, speaking at a conference, for the light bulb to finally go off!  That’s bad, isn’t it??  It’s ok, you can tell me!  My only excuse is that my brain is so flooded with a constant influx of information that I occasionally only see things for there face value. 
     After I spent an hour listening to Erin Pospychala present on ‘Down Syndrome and Hearing’, every thing became instantly clear.  The information was explained in manner that had never been approached before, something that A.I.’s audiology department didn’t have…Time.  Ben and I always thought we understood the feedback we received from Natalie’s hearing tests, but it wasn’t until that fateful Sunday morning that everything came full circle.  It was like a scene from a movie when the main character has a flash and his/her lost memories come flooding back. In an instant, things that were previously clouded suddenly became crystal clear.  I walked away from that conference stunned and in disbelief.  All that I thought I knew was…well…inaccurate.  To this day, Natalie has yet to pass a newborn hearing screening and she’s been tested about a dozen times.   According to the VRA, that’s been completed twice in the past six months, she has a moderate hearing loss in both ears. 
     It’s clear to us that Natalie can hear, but just how well?  We are at a crucial point in her life for speech development and I want to be certain that she gets the most from her speech therapy, resuming August 24th (more on that story later!).  I‘m proud to say, for her upcoming ENT appointment, I’m going in with an open mind and a list of questions…all thanks to Erin!
          Every single night I read and sing to Natalie.  And every single night when I sing “You Are My Sunshine”, she places her left cheek on my left cheek positioning my lips directly against her ear.  This was one of the moments that came full circle when listening to Erin’s words.  Natalie knows she can hear me better and can feel the vibration of my words from my face against hers.  She is such a smart little cookie!!  

Wednesday, June 20, 2012

Good Life

 
You know the song Good Life by One Republic…

  It is so applicable to my life.  Every time I hear it, I melt.  I truly have a Good Life!

Woke up in London yesterday
Found myself in the city near Piccadilly
Don't really know how I got here
I got some pictures on my phone

With this verse I instantly think of Welcome to Holland by Emily Perl Kingsley

New names and numbers that I don't know

So true!  Majority of the names and numbers stored in my contacts are relatively new.  Granted I know them now.  Less than a year ago, I knew none of them.

Address to places like Abbey Road
Day turns to night, night turns to whatever we want
We're young enough to say
Oh, this has gotta be the good life
This has gotta be the good life
This could really be a good life, good life

Gotta be the Good Life?  Nope. This IS the Good Life!

I say, "Oh, got this feeling that you can't fight"
Like this city is on fire tonight
This could really be a good life, a good, good life
To my friends in New York, I say hello
My friends in L.A. they don't know
Where I've been for the past few years or so
Paris to China to Colorado

To some of my friends I do say hello.  To the others, they are the ones in L.A.; they don’t know my new life.

Sometimes there's airplanes I can' t jump out

There was a point in the past 16mos that I could completely visualize myself on the edge of the airplane door, ready to jump out.
 
Sometimes there's bullshit that don't work now

There is stuff that doesn’t work now {relationships, techniques, systems, etc} and bullshit is exactly what it is.  

We are God of stories, but please tell me
What there is to complain about?
When you're happy like a fool, let it take you over
When everything is out you gotta take it in

What is there to complain about?  Nothing, I have a good life.  I occasionally need this song to shift my thought process, make me happy, and allow it to take over!

Hopelessly
I feel like there might be something that I'll miss

I do deal with a constant feeling that there is something that I’ll miss ~in regards to Natalie~ whether it’s a service, conference, seminar or class that I need to sign up for or enroll her in.  It’s a constant.  It will never go away. As she progresses and reaches milestones, as her parent, that means there's another step to be taken.

Hopelessly
I feel like the window closes oh so quick

This symbolizes my constant awareness that I need to be one step ahead.   If she misses something, if that window of closes to quickly; it’s my fault for not being there sooner to scoop up that opportunity. I am the only one to blame.

Hopelessly
I'm taking a mental picture of you now

My mental picture of Natalie is a side profile of her face.  I pray that it will be etched in my memory, forever.

'Cause hopelessly
The hope is we have so much to feel good about

I truly know that I have so much to feel good about!!

Oh, this has gotta be the good life
This has gotta be the good life
This could really be a good life, good life
I say, "Oh, got this feeling that you can't fight"
Like this city is on fire tonight
This could really be a good life, a good, good life
Oh yeah, good, good life, good life, oh, this is

This IS the Good Life!