Working adults with Down Syndrome hardly get paid

by Sharmila Dhal from gulfnews.com:

A week after a new law aimed at protecting the rights of those with special needs was passed in the emirate, Rebecca Corley, founder of the All 4 Down Syndrome support group, tells SHARMILA DHAL the challenges those with Down Syndrome face and how the new law could change things for them.

Rebecca Corley, founder of the All 4 Down Syndrome support group talks about the challenges Down Syndrome patients face and how a new law could change things for them. Excerpts from an interview:

What are the main challenges facing children and adults with Down Syndrome in the UAE?

The main challenge is for parents to get children admitted into nurseries and schools as around 80 per cent of them are not inclusive. But high functioning children with Down Syndrome have a right to function in mainstream schools.

So where is the problem?
Most schools have long waiting lists and there are more and more kids who need learning support these days. In nearly nine out 10 times, children with Down Syndrome don’t get a chance because they need a full time shadow teacher/learning support assistant (LSA) which the parents must provide.

Life-Changing Lessons for Parents in the UAE

by Dhanusha Gokulan from the Khaleej Times:
Ghada Omar, mother of a one-year-old with Down syndrome is extremely active on Facebook and other social networking websites. Omar’s statuses and updates revolve around her need to find information about her son Hassan’s condition. The boy was diagnosed with Down syndrome at birth.

Apart from looking for support groups online, Omar seeks to raise awareness and gather information about special needs kids through social media. “When Hassan was born I was completely ignorant. I did not think that something like this would happen to us, especially since our family has no history of Down syndrome. But discovering that my child has Down syndrome turned by life 360 degrees. It tests you as a parent on so many levels,” said Omar.

Concern over high incidence of Down syndrome in UAE

By Samir Salama, Associate Editor from Gulf News.com:
FNC members ask for incidence of Down syndrome to be cut down.

Abu Dhabi: Action must be taken to cut the high incidence of Down syndrome among Emiratis, which is double the global average and higher than the incidence in other GCC members, the Federal National Council told the government yesterday (Tuesday).

Dr. Amal Abdullah Al Qubaisi, a member from Abu Dhabi, asked Abdul Rahman Al Owais, Minister of Health, why the incidence of Down syndrome, a chromosomal condition which affects physical and mental development, among Emiratis is twice the world average and what action the ministry has taken to address the issue.

“How can the Ministry of Health explain this extremely high incidence of Down syndrome among Emiratis [one in every 319 births], compared to Oman [one in every 500 births], Qatar [one in every 546 births], Saudi Arabia [one in every 554 births] and Kuwait [one in every 581 births],” Dr Amal asked.

The condition is associated with delayed growth, joint laxity and incomplete organ formation, mostly of the heart.

The incidence of Down syndrome among Emiratis in Dubai is one in every 320 births, higher than the world average of one in every 800 births, according to data released in March by the Centre for Arab Genomic Studies.

Dr. Amal questioned the ministry’s coordination with other competent authorities, including the Ministry of Social Affairs, demanding utmost care be given to Down syndrome patients and their families. Dr. Amal also urged the Ministry of Health to set up specialised clinics in every emirate, providing free of charge medical services and reduce the charge for rehabilitation sessions to not more than Dh150 a session.

Dr. Amal said as many as 938 students in the UAE were patients with Down syndrome and asked Al Owais what was the total number of patients with Down syndrome in the country.

The Minister of Health said the global average was now one in every 600 births, pointing out that the incidence had grown with increased maternal age and high number of children.

He reviewed the ministry’s efforts including pre-marital examination for would-be couples and marital medical services. Al Owais called for concerted efforts to better educate members of the public about the condition.

Hamad Al Rahoumi, a member from Dubai, asked Al Owais about the possibility of opening clinics for Quranic healing.

But Al Owais said the Ministry of Health has nothing to do with faith healing.

Al Rahoumi said preventing imams from practising Quranic healing has led people to turn to sorcerers.